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OPEN LETTER: Now is the Time

Apr 2020

Dear Editor,

I am a geriatric physician in New Jersey. Like everyone during this COVID-19 crisis, I’m troubled by the shortages in resources and the difficult decisions our healthcare teams may soon be facing.

I know many of us are feeling anxious by the uncertainty of it all. It’s impossible to plan for everything. But, we can help manage life’s unknowns by talking openly, especially about what matters most to us and what we’d want if we became seriously ill with coronavirus. Caregivers may need to make decisions for us and we can’t assume they know what we would want. If we don’t say it, they won’t know it. Open conversations can provide clarity and comfort and may help to alleviate some of the stress associated with making decisions in the midst of a health crisis.

All adults should have an advance directive to identify a surrogate decision-maker and provide information about treatments they may or may not want in an emergency. However, for high-risk patients, including frail elders and patients who become seriously ill and are at risk for a life-threatening clinical event, a POLST (Practitioner Order for Life Sustaining Treatment) form may be appropriate.

POLST is a medical order and directs doctors by offering specific instructions related to a patient’s personal goals of care, artificial nutrition, resuscitation and re-hospitalization. I strongly encourage family decision-makers and authorized healthcare proxies for people living in nursing homes or other long-term care facilities to speak with their loved ones, when possible, to make decisions about future medical care, and to put them in writing.

GOCCNJ is helping to educate the elderly, nursing home residents, their loved ones, and their authorized healthcare proxies about the importance of discussing and documenting wishes for medical care in either an advance directive or POLST. GOCCNJ will lead a daily M-F, 30-minute Zoom webinar at 1:00 PM EST through April 24th. Visit www.goalsofcare.org to register for the webinar and access free tools and resources about COVID-19 and the advance care planning process.

It is always better to make plans for future medical care before a medical emergency. As we are living in an unprecedented time, NOW is the time to discuss, decide and document your wishes for medical care. Please, help our medical staff offer heroic interventions to those who wish to have it, so we don’t burden those who wish to avoid it.

Stay safe.

David Barile, MD
Director of Palliative Medicine Services and Medical Director of the Acute Care for the Elderly Unit at Penn Medicine Princeton Medical Center Founder and Chief Medical Officer, Goals of Care Coalition of New Jersey

GOCCNJ is a 501(c)(3) nonprofit organization and the only network of organizations in NJ working together to make certain that patients with serious illness get the care they need and no less, and the care they want and no more. Through education and advocacy, GOCCNJ’s mission is to ensure that healthcare providers, patients, and family caregivers have the information, resources, training, and tools they need to facilitate discussions that result in a care plan that aligns treatment with the patient’s goals of care. 

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Goals of Care Coalition of New Jersey
For more information, please contact Jessica Brown.

4Step iCare Plan

An Individualized End of Life Care Plan

Our 4Step iCare Plan is a simple, 4-step approach that helps patients, families, and healthcare providers navigate through challenging medical decisions.
Learn more with our video series and helpful tools

The NJ POLST Form

A NJ POLST form will inform your healthcare providers about the types of medical treatment you’d like to receive.
Learn more about the NJ POLST

Get Involved!

 As an agent of change. Join the Goals of Care Coalition of New Jersey to help improve end of life care for patients and families.
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GOCC Resources:

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NJ POLST Form Videos and Documents

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GOCC Resources:

wtfdivi014-url6
NJ POLST Form Videos and Documents
wtfdivi014-url6
NJ POLST Form Videos and Documents

Programs

Programs

Programs