Disease Specific Information
Resources for Patients & Family Caregivers
Goals of Care Coalition of NJ strives to bring patients & family caregivers the latest resources on disease specific information.
The Coalition for Supportive Care of Kidney Patients (CSCKP) brings together like-minded people who care deeply about the quality of compassionate, supportive care for kidney patients. We are professionals from many disciplines and laypersons who are working for true patient-centered care that values quality of life.
Many patients with advanced cancer and their caregivers have questions about what they might expect during the last few months of life. At this link, you can find information on what to expect when you or someone you care for are nearing the end of life, as well as information on hospice care and on coping with the loss of a loved one.
When a person with late-stage Alzheimer’s disease nears the end of life and is no longer able to make his or her own decisions, families will need to choices on the person’s behalf. The Alzheimer’s Association can help prepare for making these end-of-life decisions.
While diabetes can be effectively managed, it can be difficult at times. With age comes an increased risk for complications that need to be properly addressed. Long-term care and end-of-life planning is also important to look into for your later years.
An important part of shared decision-making in advanced heart failure is to clarify what you would want done when future events occur, including unexpected ones. Advance care planning is the process of anticipating future scenarios and communicating your preferences for the types of treatment you’d like to receive.
No one wants to think about what would happen if you were unable to communicate due to a heart attack, stroke or illness. Here you can find information about steps you can take in advance to make your wishes known about the types of treatment you’d like to receive.
Thinking about death can be painful for you and your loved ones, but knowing what to expect at the end of life can help you work through the practical issues and emotional road ahead.
Some of the information presented from the links on this page were not developed by Goals of Care Coalition of New Jersey. They are presented here with permission from the organizations that developed the content. Goals of Care Coalition of New Jersey (New Jersey Goals of Care) is not responsible for updating or maintaining their content. Presentation of this content on the Goals of Care Coalition of New Jersey website does not represent an endorsement of these organizations or websites.
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